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Health Materials

FCIC Materials & Resources

NEW!My Health Report – For Regular Visits to Your Doctor

Medical professionals have very limited time to gather important information during medical appointments. FCIC’s My Health Report has been designed with feedback from family physicians to help individuals and family caregivers give relevant health information as efficiently as possible. By completing this information and sharing it with your doctor, it will help him/her determine why you are feeling sick. It also helps to free up more time for communication, and discussion of what treatment options are available to address your health issue. Dr. Liz Perkins would welcome any feedback or comments regarding My Health Report at eperkins@usf.edu.

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My Health Passport - For Hospital and Clinic visits

FCIC's My Health Passport is a health advocacy document that describes the unique supports and preferences of an individual. It is designed to be shared with many types of healthcare providers, in clinic and hospital settings, especially for those who are not very familiar in providing care to individuals with intellectual/developmental disabilities. Hard copies of My Health Passports are currently available, and can be ordered free of charge by contacting Dr. Liz Perkins or (813) 974-7076. The forms are also available for free download.

Education for Lifelong Health Series Factsheets

This series of factsheets were designed for people with mild intellectual disability. They can be used to help raise awareness about serious health conditions that become more common with increasing age. Usual treatments and prevention tips are also highlighted. Download each factsheet individually from the links below, or click on the complete series to download all five at once! Dr. Liz Perkins (eperkins@usf.edu) would welcome any feedback or comments regarding these factsheets.

Education for Lifelong Mental Health Series Factsheets

These factsheets were designed for people with mild intellectual disability to learn about mental health issues. They can also be a resource for mental health professionals, family caregivers, and support professionals to educate and raise awareness of mental health concerns. Usual treatment and strategies for maintaining mental health are highlighted. Future factsheets will feature coping with stress, grief. Dr. Liz Perkins (eperkins@usf.edu) and Dr. Natalie Romer (romer@usf.edu) would welcome any feedback. We also welcome any suggestions regarding other topics!

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Physicians’ Fact Sheet Series

This is a new series of factsheets aimed primarily at Physicians and other health professionals to have succinct information about a range of topics regarding care of adults with intellectual/developmental disabilities. Dr. Liz Perkins (eperkins@usf.edu) would welcome any feedback or comments or suggestions for topics.

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BHIP Health & Wellness Brochures

The FCIC has developed the BHIP (Be Healthy Information Program for Children and Adults with Disabilities) health and wellness brochures to provide individuals with developmental disabilities with important information about living a healthy life. All brochures are available to download as pdfs documents from the links below.

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Compound Caregivers: Overlooked and Overburdened (White Paper)

Compound Caregivers: Overlooked and Overburdened is a white paper authored by Dr. Elizabeth Perkins regarding the challenges encountered by older caregivers of adults with intellectual disabilities when they also caregiving for other family members. The white paper is an attempt to alert policy makers and service providers alike of this emerging trend and offers recommendations for how to increase the availability of supports.

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Sexuality & Developmental Disabilities Across the Lifespan

The subject of sexuality can be daunting. Add to the mix a physical or cognitive disability and you may find yourself feeling totally unprepared to deal with the subject matter. Staff from the Florida Center for Inclusive Communities collaborated with the Florida Developmental Disabilities Council and the Center on Intellectual Disabilities at the University of Albany to create an easy to use workbook for families and educators of individuals with developmental disabilities. The Instructional Manual and the accompanying Resource Guides are designed to help educators and family members assist individuals with developmental disabilities in their exploration of self and sexuality.

Other Useful Materials & Resources

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A Guide for States: Coverage in the Medicaid Benefit for Children and Adolescents

This guide, published by The U.S. Centers for Medicaid and Medicare Services (CMS) provides states, health care providers and others understand the scope of services that are covered under the Early and Periodic Screening, Diagnostic and Treatment (EPSDT) benefit. EPSDT is designed to ensure that children and adolescents receive appropriate preventive, dental, mental health, and developmental, and specialty services through their Medicaid programs.

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Our Lives, Our Health Care: Self Advocates Speaking Out About Our Experiences with the Medical System

The Office of Developmental Primary Care and Autistic Self Advocacy Network collaborated to produce this document. It outlines the perspectives of people with I/DD on their interactions with the health care system and articulates an agenda to reform the way health care services are delivered for people with intellectual and developmental disabilities (I/DD). This report was compiled based on feedback from focus groups conducted by People First of Washington State, Green Mountain Self Advocates and the Autistic Self Advocacy Network of Boston.

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Affordable Care Act - What Disability Advocates Need to Know

The Arc (link to Arc's main website  http://www.thearc.org/)  released this policy report to clearly describe the provisions of the Affordable Care Act (ACA). It is vital that the disability community understands the law and the many benefits it can provide to people with disabilities. View pdf document.

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Stress and What You Can Do About It

Stress and What You Can Do About It is a full color book that takes individuals with developmental disabilities through a colorful, graphically attractive and easy-to-read lesson in the basics of stress and stress management. Hard copies may be ordered online through the FDDC website.

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Easing Your Stress – Information for Caregivers of Individuals with Developmental Disabilities

An informative and user-friendly booklet  that describes how to manage stress. Caregivers learn how the mind-body connect affects response to stress, how stress affects children,  and how other caregivers have learned to ease their stress. It also describes what resources are available, and how  caregivers can identify approaches that will work best for them. Hard copies may be ordered online through the FDDC website.

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Health Insurance for Young Adults

Just The Facts: The 411 on Health Insurance for Young Adults Ages 18-30 in Florida is designed to help all young adults - including those with chronic health conditions or disabilities - identify, access, and maintain health insurance coverage that meets their needs. To view the document or download a PDF version, click here. Resource provided by FloridaHATS.

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Planning Ahead

A handbook for parents, family members and guardians of adults with developmental disabilities. Provides information that will help identify and plan the direction and future regarding the quality of life family members' desire. Personal information summary included to ensure the safety and happiness of a surviving family member with a disability. (2005) Resource provided by the Florida Developmental Disabilities Council.

Health Links

This page includes links to both internal (FCIC) and external (non-FCIC) websites. External links are selected and reviewed when the page is published. However, the FCIC is not responsible for the content of external websites. The FCIC website does not accept submissions or requests.

The National Disability Resource Collaborative

The National Disability Resource Collaborative is an initiative aimed at providing cross-disability information and support to Navigators and other enrollment specialists thereby ensuring people with disabilities receive accurate information when selecting and enrolling in insurance through the Affordable Care Act Marketplaces. The NDNRC website also has news, fact sheets, and other useful resources designed to support groups who are providing enrollment assistance to consumers with disabilities as they enroll for coverage through the ACA marketplaces.


Florida Office on Disability and Health

Florida was recently awarded a disability and health grant from the Centers for Disease Control and Prevention. This grant allowed for the creation of the, housed within the College of Public Health and Health Professions at the University of Florida The establishment of the Florida Office on Disability and Health (FODH) in Florida will facilitate the movement toward continuity in care for people with disabilities and their families, serving as a centralized location for designing, implementing, monitoring, and evaluating programs and services. A major aim of the FODH will be to generate epidemiologically sound and consistent data on disability and health, using both new and existing sources of data, so that disability and health-related public health policies and programs within the state are data-driven, evidence-based best practices.


Association on University Centers on Disabilities - Healthcare

AUCD works on all of the issues encompassed in the very broad term "health care" for people with disabilities. Specific emphasis is placed on a community rather than institutional bias in affordable, equal access to health care. This includes private health insurance, public programs such as Medicaid and Medicare, managed care, as well as quality assurance and consumer education protections


FloridaHATS

Florida Health and Transition Services (FloridaHATS) is a collaborative program of the Florida Department of Health, the Children’s Medical Services Network, the Florida Developmental Disabilities Council, and other partners throughout the state.

FloridaHATS’ mission is to ensure successful transition from pediatric to adult health care for all youth and young adults in Florida, including those with disabilities, chronic health conditions or other special health care needs.

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