This resource can help you think about what kind of health decisions you might have to make, and who could help you.
This fact sheet provides information about public policy, advocacy and the ingredients needed for effective systems change.
This fact sheet provides information about inclusion, self-determination, and the supports needed to ensure inclusion happens.
This is a sample letter for sharing your message with your state legislator.
This page includes links to both internal (FCIC) and external (non-FCIC) websites. External links are selected and reviewed when the page is published. However, the FCIC is not responsible for the content of external websites. The FCIC website does not accept submissions or requests.
Finding Your Legislators
Call, email, or mail U.S. state and federal elected officials and government agencies.
To find your Legislators, enter either your mailing address or zip code.
You may sort by Representative, Party, or District by clicking on the appropriate header label. You can also find your representative by clicking on the "Find Your Representative" icon.
You can sign-up for the FDDC Florida legislatives alerts mailing list.
Other Helpful Links
The oldest professional association devoted to working with and for individuals with an intellectual disability or developmental disabilities.
The Association of University Centers on Disabilities (AUCD) is a membership organization that supports and promotes a national network of university-based interdisciplinary programs. Network members consist of: 67 University Centers for Excellence in Developmental Disabilities (UCEDD), funded by the Administration on Developmental Disabilities (ADD); 35 Leadership Education in Neurodevelopmental Disabilities (LEND) Programs funded by the Maternal and Child Health Bureau (MCHB); and 19 Developmental Disability Research Centers (DDRC), most of which are funded by the National Institute for Child Health and Development (NICHD).
Sign up to receive AUCD’s In Brief – a weekly federal disability policy news summary.
The Health and Human Services Office on Disability was created in October 2002 in response to the New Freedom Initiative. The office oversees the implementation and coordination of disability programs, policies and special initiatives pertaining to the over 54 million persons with disabilities in the United States. The New Freedom Initiative established seven distinct domains in the area of disability: community integration, education, employment, health, housing, technology, and transportation.
The IDEA Partnership is a national organization dedicated to improving outcomes for students and youth with disabilities by joining state agencies and stakeholders through shared work and learning. The IDEA Partnership is devoted to stimulating new ways for stakeholders, administrators, service providers, family members, policymakers, and other interested individuals – to work together on issues related to IDEA 2004 that are shared across states and districts; across roles and relationships. To accomplish this goal, the IDEA Partnership provides opportunities for stakeholders to move beyond information and build shared meaning; to go beyond dissemination to joint understanding and action.
NCD's overall purpose is to promote policies, programs, practices, and procedures that guarantee equal opportunity for all individuals with disabilities, regardless of the nature or severity of the disability; and to empower individuals with disabilities to achieve economic self-sufficiency, independent living, and inclusion and integration into all aspects of society. NCD has a free ListServ to receive news and bulletins.
A self-study course designed to help people with developmental disabilities and their families create positive change through advocacy.
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